The IBC map is a personal project of Terry Arnold, founder of The IBC Network Foundation. She started this map as a visual aid to show “rare does not mean never”. This map has received the attention of media and also researchers, and has been used as a reference in published papers on the need to launch more studies.

We update the map quarterly so if you would like to be included, please complete the form here.

DX – Red Markers
NED – Green Markers
Passed Away (from IBC) – White Markers
Passed Away (not from IBC) – Gray Markers
In Treatment – Blue Markers